The Commons Abigal Durrant Alex Ivanov Andre Knoerig Ann Morrison Ben Short Cheryl Qian Derek Lomas Eric Cook Eric Schweikardt Guy Birkin Helen Papagiannis Holger Dick Jennifer Stoll Joe Marshall Joel Eden Johann Sarmiento Karl Willis Lorna McKnight Lucia Terrenghi Nancy Patterson Natalie Ebenreuter Nick Knouf Philippa Riley Sona Hairabedian Steve Dow Umer Farooq |
1. INTRODUCTIONDementia is a syndrome that encompasses a whole range ofbrain disorders that share a loss of brain function [1]. Core features inherent in all dementias include short- and long-term memory impairment, a decline in cognitive function, and frontal executive dysfunction [7]. Whilst concentrated attention is being given to finding a cure for this debilitating disease, researchers are realising the importance of providing a better quality of care for people with dementia. Research in this area has highlighted various ways safety and care for people with dementia can be improved, for example by using assistive technology, training staff, and educating people about dementia. Another successful strategy is to provide activity sessions that people with dementia can participate in on a daily basis. By participating in activities, people with dementia can improve their quality of life. Musical activities continue to be appreciated by people with dementia, even in the advanced stages of the condition, and that can make it a useful resource for carers. However, while activities such as listening and singing to music can be enjoyable for people with dementia, there are limitations in how it can aid communication and self-expression. In contrast, active music making can be an extremely powerful way to allow people with dementia to communicate. It provides them with a way to express their feelings, which can otherwise be problematic as one of the symptoms of dementia is having difficulties with communication, and in particular, communicating how they feel. During the 1950s/60s, Paul Nordoff and Clive Robbins carried out research into improvised music making with disabled children, which they termed ‘creative music therapy’, and they had many positive results [8]. They believed everyone could respond to music, no matter how disabled they were, and their work has demonstrated how music can be used to help people express themselves, improving quality of life. People with dementia may eventually find verbal communication and self- expression impossible, and this can result in feelings of isolation and frustration. Finding a way for them to communicate non- verbally through active music making could be a way to facilitate self-expression and thus increase quality of life. This research investigates how technology can be used to enable people with dementia to participate in musical creativity sessions. Active music making can be difficult for people with dementia due to the symptoms of the disease. Problems with cognition and motor skills (such as lack of concentration, memory impairment, difficulties with movement and the inability to learn new skills) can make it difficult or impossible to learn to play musical instruments. These instruments tend to require learning or prior knowledge to play. If the person is non-musical, does not have retained memory of playing, or has severe motor problems, it will be difficult for them to make music with these instruments. These issues have left music therapists with a limited choice of instruments for active music making and it is perhaps clear why many therapists appear to favour percussion instruments [3] [9]. Percussion instruments are easier for the novice to play, with minimal tutoring required in order to obtain a reasonable sound – one can simply bang, shake or rattle the instrument. While group sessions using percussion instruments can be enjoyable for participants, they are not necessarily successful for making meaningful music. It would be untrue to say that percussion instruments cannot be tuneful, as examples exist in the form of the piano, xylophone and timpani drum. However, it would be just as difficult to produce a melody from percussion instruments like these as it would from a musical instrument, such as the trumpet or clarinet – skill is required. Other music therapy sessions use untuned percussion instruments, such as tambourines, drums and triangles, to produce rhythmical sounds, and participants are encouraged to join in with their own rhythm. However, some skill is still required to play rhythmical passages in groups that sound easy on the ear, and it may be that the overall sound or rhythm produced is not satisfactory to listeners. Technology can be developed that will provide an easy-to-use interface, and also ensures all music created will sound harmonious. It is therefore proposed to use technology to enable people with dementia to make music, and additionally aid communication of emotion. It is generally accepted that music can be used to express emotion [6], and by taking advantage of this facility in music, a tool could be developed that could ultimately be extremely beneficial to those with dementia. This research aims to develop a tool that will allow people with dementia to participate in music making sessions, both on their own and with another person. If successful, this could bring musical creativity into both the family home and nursing home, and could perhaps also be used by music therapists. 2. CURRENT WORKThe initial phase of this research involved the researchervolunteering at an Alzheimer’s day care centre in Dundee, Scotland for one morning a week, to take part in activities and make informal observations of clients and carers. On joining, the group consisted of 10 clients, 3 carers and 2 volunteers. The clients generally seemed to have mild dementia, although two clients displayed symptoms of moderate to severe dementia. The purpose of the researcher’s observations was to recognise and appreciate the affects of dementia, not only on the clients, but also those caring for them. The researcher already had twelve years experience of helping to care for a family member with dementia, and therefore appreciated the affects of the disease on close family members. Initial observations highlighted the difficulty carers had in thinking up activities that a) they believed clients would be able to do, and b) felt confident enough to take. Activities observed over the first six weeks consisted of discussion groups and physical activities (such as bowling), and it was not uncommon for some clients to be unable or unwilling to participate. It is important to note that these professional carers are not trained as music or art therapists, and so it is not difficult to understand why creative activities are not widely available for clients. After six weeks, the researcher took the opportunity to ask clients and carers if they would like musical activity sessions introduced. They agreed it might be fun, and so the researcher began to bring in her keyboard, playing traditional Scottish songs and old music hall songs. This was important to do, in order to observe how the clients reacted to musical activities. Positive changes were observed immediately. One client who often sat picking her hands, or who would be aggressive, making abusive remarks, instantly became calm and would dance to the music on her own, or with a carer or volunteer. If sitting, she would make pronounced movements with her hands and arms, seemingly absorbed in the music. Other clients also reacted well to the music, wanting to sing or hum, dance, tap their feet, and clap their hands. It appeared that they were enjoying the activity, and at least four clients continue to make verbal reference to this fact on a weekly basis. Two of the clients often ask the researcher if she has brought her keyboard, although one calls it a ‘music box’ and the other imitates playing a piano to get her question across. These sessions have worked well, and so other musical activities were attempted to bring variety to the sessions. As well as playing a different set of songs (such as those sung by Frank Sinatra, Shirley Bassey and Cliff Richard) for group singing and dancing sessions, musical activities now also include: • Name that tune, where many clients recognise and begin singing the tune after 2 and 3 notes. • Reminiscing about pieces of music. • Debating the meaning of songs after they have been played (generally Scottish songs). • Guessing instrument sounds, or choosing favourite instruments to use for song playing. • Writing lyrics of old Scottish songs on a flipchart, and then teaching the researcher the tune. This is done with the clients, carers and the other volunteer singing the song line by line. The researcher learns the tune and eventually everyone sings the song, whist the researcher plays. • With the researcher being English, much fun is had with the clients transposing Scottish words into English, and then singing the song in an English accent. As a comparison for creative activity, the researcher wanted to see how clients participated in art sessions, and so took in card making materials. Fewer clients participated in this session (one was absent, two went for their daily walk and one was agitated), and so four clients made cards, while two preferred to watch. With guidance provided where necessary, clients made a card each. At times, the clients encouraged and helped each other. This session lasted approximately 1½ hours, and no clients displayed signs of agitation or lack of interest during this time. When the cards were finished, they were displayed on a board. It was interesting to see the clients congratulating each other on their work, and also showing pride in their own work. One client commented on how nice it was to do something different. After doing background reading, and making observations at the day centre, the researcher decided to concentrate on musical creativity. This decision was based on the belief that creative activities involving art (painting, collage work and crafting) appeared to be more readily available for people with dementia, than musical creativity sessions. This is possibly due to a number of reasons, including: • Music making activities are perhaps more difficult to support than art sessions, both in terms of the skills required by the person taking the session, and the people with dementia who join in. There may be a lack of confidence on the part of non-musical carers to take active music making sessions. • Materials required to participate in art sessions (paper, paint, pencils, etc) may be cheaper and easier to obtain than musical instruments. • There may be a lack of music therapy specialists available. The researcher believes there is a real need to use technology to develop a new musical instrument that is intuitive and easy for people with dementia to use. It appears less crucial to use technology to produce an art-based device, as there are already a number of accessible activities available, including painting, drawing, collage work, and paper crafts, etc. The researcher therefore proposes to develop novel technology that will provide a solution to the lack of usable musical composition tools available for people with dementia. It is proposed that a device be developed that considers the following requirements. • Is easy and intuitive to use. • Plays music instantly, i.e. provides one-touch feedback. • Allows users to express themselves. • Can be used on a one-to-one basis, or alone. • Does not require a prior knowledge of music. Looking at the first three points above in more detail, in terms of providing an easy and intuitive design, the CIRCA reminiscence tool has already successfully been developed for people with dementia [2]. CIRCA uses a touch screen that people with dementia can press in order to make choices to view photographs and listen to pieces of music from an era appropriate to them. The researcher’s proposed tool would follow on from the design methods used for CIRCA, providing the user with a simple and uncluttered interface. It is intended that the physical device be a touch screen positioned horizontally on a table in front of the person. This is a familiar position generally adopted to do other activities, such as writing letters and drawing. Also, in terms of mobility, it is expected this would be a more comfortable position for extended play sessions, than using the touch screen vertically. The device could also be developed to enable people with dementia to express themselves through music. This appears possible to achieve as research into musical communication highlights how chords can be used to express emotion. Major chords are generally thought to portray a happy mood, and minor chords, a melancholy or sad mood [4]. Any chord can follow another and always sound harmonic [5], and it should therefore be possible to group chord types so that they sound pleasant and give the person using the device, and any listeners, a sense of expressed emotion. Instrument choice will depend upon the emotion to be portrayed. For example, a happy emotion may be best achieved using the bright sound of a brass instrument, whilst a more melancholy emotion may be better expressed through sustained strings. A facility will be included to allow settings to be changed, such as instrument used and volume. However, the list of instruments for each mood type cannot be exhaustive, as the sound used must effectively portray the emotion chosen. It is likely this option to change settings will be hidden in some way, so as not to distract the person with dementia when using the device. 3. PROPOSED DEVICEThe researcher created some small-scale prototypes usingPowerPoint, in order to establish how the device might look and work. The prototypes were also useful in illustrating how the device would express emotions using chords. Prototypes were shown to various colleagues, peers and also experts in the field of dementia, in order to gain initial reactions to design, usability and potential. Responses have been positive. The initial screen display will use visual and audio prompts to invite the user to select text, picture or sound buttons. This is an important option to include, as the ability to read and comprehend is affected by the severity of the person’s dementia. Someone with mild dementia may still be able to read and comprehend words, and so can select the text button. Someone with moderate to severe dementia may find it easier to use picture buttons displaying a facial emotion. A person in the latter stages of dementia, who has lost the ability to recognise both text and pictures, may be able to make a choice using sound. It is probable they will require help to use the device, and so it is likely their carer will select the sound button and play sample sounds to the person with dementia. It is anticipated the person may still be capable of making a recognisable choice of one of the sounds played. Three buttons will be displayed providing a choice of three emotions (e.g. happy, sad, angry). The user will then receive an audio and visual prompt asking them to choose a button to begin play. Once this has been chosen, the background colour will change to match the emotion to be portrayed. The user will be prompted to touch and drag their finger around the main window of the interface. On touching the screen, they will receive instant feedback of chord sounds, which should portray the emotion chosen. As the user moves their finger around the screen, they will also receive visual feedback (see Figure 1). This will be in the form of randomly sized shapes (for example, the happy mood may use circles). Shape type and colour will reflect the emotion chosen, complimenting the background colour. As the user’s finger moves, so they almost begin to draw on the screen – leaving a trail of shapes. It is hoped that the visual trail will continue to prompt the user that something will happen as they touch the screen. For those with severe short-term memory loss, this may increase the length of time they choose to use the device. Dragging their finger up and down the screen will play a passage of chords in sequence (as input into the device), which will sound harmonious and musical. By touching different parts of the screen, the user will play chords of different pitch and dynamic. As well as adding more depth and feeling to the music created, it may also be possible to hear a tune developing. Additionally, the music will portray the initial emotion selected. Chord pitch will be controlled on the vertical line (see Figure 1). Touching the top of the screen will play a high-pitched chord, whilst moving lower down the screen will produce lower- pitched chords. It is hoped people with dementia will more easily make sense of high-sounding chords being positioned high on the screen, and low-sounding chords being positioned lower on the screen. Dynamics (or volume) will be controlled on the horizontal line (see Figure 1). A chord that is played by touching the left of the screen will sound quieter, but will gradually get louder as the user moves to the right of the screen. This will enable users to add more feeling to their music, as dynamics can be used in musical compositions to change the emotional impression of melody and harmony [5]. Additional features include: • Automatic recording of music made and corresponding visual trail. This can be used immediately afterwards and at other times, to play back to the person who created it. It may also provide family members with a rare opportunity to capture a moment in time spent with a loved one with dementia, where emotion has been expressed. • Volume intensity control, to help those who have a hearing impairment so that they are more able to use the device. • Change of shapes and colours, to provide more choice. However, as already discussed above for the instruments, shape type and colour cannot be exhaustive, as they must still portray the emotion initially chosen. The aim of this device is to provide people with dementia with the facility to express themselves effectively through their own creative music making. If this can be achieved using novel technology that is both intuitive for the user and easy for carers to support, then the act of music making may at last be more widely available to people with dementia who do not have access to music therapists, or musical relatives and carers. Figure 1. Showing simulated use of the device. Music is played in main window, after selecting an emotion from the buttons provided. A visual trail appears as the user touches the screen. Pitch is controlled by moving finger up and down, and volume, by moving finger left to right. 4. METHODMethods used will consist of initial trials, carried out withhealthy older people in order to establish the usability and effectiveness of the design. To finalise the design, additional tests will be carried out with people with dementia, again looking at usability and content issues. Formal testing will be carried out on the device to determine whether technology is more able to facilitate musical creativity for people with dementia, than traditional musical instruments. This will be achieved by asking participants with dementia to play either the device or a traditional instrument. Identical testing may also be carried out on healthy older adults in order to provide a comparison. All sessions will be recorded using a video recorder. Musicians will be asked to comment on the music produced by analysing the video recordings. They will be asked to look for signs of if and how the participant creates music. During observations, they will determine whether the participant is: • Finding out how the ‘instrument’ works. • Playing without purpose or meaning, with no apparent understanding of what the instrument does. • Playing purposefully, creating basic melodies. • Playing purposefully, creating more complex melodies (perhaps including loops, patterns). Video footage will also be used to observe other behaviours, such as facial expression (smile, frown, etc), verbal communication, length of use and repeated use. Data from these observations will be used to identify whether people with dementia are able to be musically creative, and to what extent. Additionally, results will establish whether the person finds enjoyment from the device and is actively engaged. Results may also show that people with dementia are more able to creatively express themselves musically using technology, than using traditional methods. If so, it may be possible to ease communication difficulties and thus increase quality of life for people with dementia through an easy to use, easy to support, musical creativity tool. The researcher is still working on the best way to capture, record and analyse data to provide evidence to show whether people with dementia are using the device to be musically creative. It is also important to find a way to show if the device does enable people with dementia to express themselves, in order to determine whether it also provides a creative means for communication. Formal ethics procedures will be followed at all times. 5. REFERENCES[1] Aldridge, D. Dialogic-degenerative diseases and health as aperformed aesthetic. In Music therapy and neurological rehabilitation: performing health. Aldridge, D. (Ed). Jessica Kingsley Publishers, London, 2005, 41. [2] Astell, A., Ellis, M., Alm, N., Dye, R., Gowans, G. and Campbell, J. Using hypermedia to support communication in Alzheimer’s disease: the CIRCA project. In Proceedings of the 11th International Conference on Human-Computer Interaction (Las Vegas, USA, June 22-27, 2005). [3] Clair, A.A., Mathews, R.M. and Kosloski, K. Assessment of active music participation as an indication of subsequent music making engagement for persons with midstage dementia. American Journal of Alzheimer’s Disease and Other Dementias, 20, 1 (2005), 37-40. [4] Cook, N.D. A psychophysical explanation of why major chords are “bright” and minor chords are “dark”. In Proceedings of the First International Workshop on Kansei (Fukuoka, Japan, February 2-3, 2006). [5] Jourdain, R. Music, the brain, and ecstasy: how music captures our imagination. Harper Collins Publishers, New York, 2002. [6] Juslin, P.N. From mimesis to catharsis: expression, perception and induction of emotion in music. In Musical Communication. Miell, D., MacDonald, R. and Hargreaves, D.J. (Eds). Oxford University Press, Oxford, 2005, 85-115. [7] LoGiudice, D. Dementia: an update to refresh your memory. Internal Medicine Journal, 32 (2002), 535-540. [8] Simpson, F. Creative music therapy: a last resort? In Music therapy in dementia care. Aldridge, D. (Ed). Jessica Kingsley Publishers, London, 2000, 166-183. [9] Vink, A. A survey of music therapy practice with elderly people in the Netherlands. In: Music therapy in dementia care. Aldridge, D. (Ed). Jessica Kingsley Publishers, London, 2000, 119-138. Last modified 18 February 2008 at 1:49 pm by haleden |